A prayer answered: Will Saw Today!
Believing in the impossible becoming possible? This Will Wednesday, I thought I would share an experience we had with Wil...
I Wish He Could See
I wish he could see. I wish he could see my love for him. I wish he could see our eyes light up when he speaks. I wish he co...
Rare Disease Day
Rare meaning not occurring very often; not found in large numbers; seldom found; Or the definition I prefer: “Distincti...
A Rare Perspective
24 eyes staring back at me. Looks of worry, fear, piercing eyes of despair. I recognize those eyes, those feelings. I s...
Just Keep Walking
Just keep walking. “Thank you Mommy” …if I could bottle that voice and those words of gratitude when they come fro...
To: HOPE From: Steele
A simple box wrapped in gold and white striped Christmas paper with a christmas tree tag reading: To: HOPE From: Steel...
2017: The year I found my tears.
I lost my tears….somewhere along the way; my tears disappeared. I have had dry, tearless eyes for the last several years. I...
The Almost Perfect Game
Tonight Will was a Baseball player. That's all he wants to be; like his cousin Bryson Kemp who plays for Klein Oak. Will was...
The Journey
Every once in a while, the heaviness of the journey we are on hits us to the core. A slurred word, a darkness in Will's beau...
Rare Disease Day
Batten disease is a fatal, inherited disorder of the nervous system that typically begins in childhood. Early symptoms of th...