16 Jul 2020 A prayer answered: Will Saw Today! July 16, 2020 Missy Herndon batten disease, Herndon family, juvenile batten disease, missy Herndon, Missy Herndon Herndon family, rare disease, the woodlands, the woodlands TX, will herndon, will Herndon fund, woodlands will herndon Blog Believing in the impossible becoming possible? This Will Wednesday, I thought I would share an experience we had with Wil...Read More
18 Apr 2020 I Wish He Could See April 18, 2020 Missy Herndon Blog I wish he could see. I wish he could see my love for him. I wish he could see our eyes light up when he speaks. I wish he co...Read More
1 Mar 2019 Rare Disease Day March 1, 2019 Missy Herndon Blog Rare meaning not occurring very often; not found in large numbers; seldom found; Or the definition I prefer: “Distincti...Read More
26 Feb 2018 A Rare Perspective February 26, 2018 Missy Herndon batten disease, houston tx, juvenile batten disease, missy Herndon, rare disease day, rare disease research, texas children's hospital, will Herndon fund Blog 24 eyes staring back at me. Looks of worry, fear, piercing eyes of despair. I recognize those eyes, those feelings. I s...Read More
20 Jan 2018 Just Keep Walking January 20, 2018 Missy Herndon Blog Just keep walking. “Thank you Mommy” …if I could bottle that voice and those words of gratitude when they come fro...Read More
14 Jan 2018 To: HOPE From: Steele January 14, 2018 Missy Herndon Blog A simple box wrapped in gold and white striped Christmas paper with a christmas tree tag reading: To: HOPE From: Steel...Read More
6 Jan 2018 2017: The year I found my tears. January 6, 2018 Missy Herndon Blog I lost my tears….somewhere along the way; my tears disappeared. I have had dry, tearless eyes for the last several years. I...Read More
25 Apr 2017 The Almost Perfect Game April 25, 2017 Missy Herndon Blog Tonight Will was a Baseball player. That's all he wants to be; like his cousin Bryson Kemp who plays for Klein Oak. Will was...Read More
22 Mar 2017 The Journey March 22, 2017 Missy Herndon Blog Every once in a while, the heaviness of the journey we are on hits us to the core. A slurred word, a darkness in Will's beau...Read More
28 Feb 2017 Rare Disease Day February 28, 2017 Missy Herndon Blog Batten disease is a fatal, inherited disorder of the nervous system that typically begins in childhood. Early symptoms of th...Read More