28 Feb 2023 RARE+HOPE February 28, 2023 Jen McDonald batten disease, houston tx, juvenile batten disease, missy Herndon, rare disease, rare disease day, rare disease research, texas children's hospital, will Herndon fund Blog Today is Rare Disease Day. Today I start my new writing endeavor: Sharing a glimpse into our world of RARE + HOPE...Read More
26 Feb 2018 A Rare Perspective February 26, 2018 Missy Herndon batten disease, houston tx, juvenile batten disease, missy Herndon, rare disease day, rare disease research, texas children's hospital, will Herndon fund Blog 24 eyes staring back at me. Looks of worry, fear, piercing eyes of despair. I recognize those eyes, those feelings. I s...Read More
